Adolescents and transition-aged youth with intellectual and developmental disabilities (IDD) experience mobility limitations and injurious falls at higher rates than their neurotypical peers. In this symposium, we will present global self-reported and observational data that place the issue in the…
https://youtu.be/j4lS1epDHQo Research on autistic adults and adults with intellectual and/or developmental disabilities (IDD) often focuses solely on the individual with the disability. However, there are multiple levels of influence on an individual's quality of life and wellbeing. This panel applies…
https://youtu.be/r3Bw1agq7j8 Premutation alleles of the Fragile X gene, FMR1, are associated with a range of psychiatric and physical health conditions that reduce quality of life for carriers and their families. Fragile X-associated tremor/ataxia syndrome (FXTAS), a neurodegenerative disease defined by…
https://youtu.be/zPS2rEb9Nok While risk factors (Campbell et al., 2009) and compensatory strategies (Tomaszewski Farias et al., 2018) related to aging in the general population are well delineated, far less research has investigated these factors in people with intellectual and developmental disabilities…
https://youtu.be/Azrdo-EMmd4 Autistic people experience substantial disparities in their health outcomes and their healthcare utilization and access. For instance, they may face delays in diagnosis, challenges with accessing care, poorer care quality, lower satisfaction with care, and limited access to healthcare…
https://youtu.be/_eBIQYLEb34 In a number of congenital neurodevelopmental syndromes with comorbid intellectual disability (ID), significant percentages of affected individuals experience infant feeding difficulties and childhood gastrointestinal (GI) issues which may persist into adulthood and adversely affect health and quality of life…
https://www.youtube.com/watch?v=RASnYypkPvs Social determinants of health (SDOH) capture “the conditions in the environments where people are born, live, learn, work, play, worship, and age that affect a wide range of health, functioning, and quality-of-life outcomes and risks” (US Department of Health…